Kidney Disease

Kidney Disease · March 19, 2020
I’ve been trying to write but my mind is whirling with what’s happening in the world. Here in Indiana schools are closed and may not reopen until the fall. Restaurants are carryout/delivery only. And, grocery store shelves are bare. You may believe everyone is over-reacting. As someone who is in the higher risk group (due to advanced kidney disease) we are NOT over-reacting. It’s scary to think I might contract a virus that could land me in the hospital on a ventilator. We are entitled to...
Kidney Disease · August 24, 2019
This is what #KidneyDisease Looks Like Well, it's been about 2 months since I started dialysis (I really meant to blog about this before now). It has required some life changes, such as a room dedicated to dialysis supplies, a machine that I'm hooked up to each night, a lovely peritoneal catheter, and a bunch of pills. So much fun (not). Every night I take 30 minutes or so to get everything ready and hook myself up for my nightly dialysis that runs for approximately 8 hours. My husband is in...
Kidney Disease · June 25, 2019
Just a short post to keep everyone updated on the continuing saga... After 7 days of training I'm all set to do my first full dialysis tonight. I'm confident I can do this with no problems. I will be doing Peritoneal Dialysis at night while I sleep (I hope I'll be able to sleep, lol). It will be an early night as the dialysis takes 8 hours and my first delivery of supplies will be here tomorrow morning between 6:30 and 8:30 am. Sigh. My next appointment with my nephrologist is tomorrow and I'm...
Kidney Disease · June 11, 2019
Welcome to my new normal. Catheter has been placed and I'm healing. I'm sore and it's hard to ignore the tube sticking out of me, I feel like a freak. I'm following my diet - the upside is that once i'm started on dialysis I can up my protein intake each day. Right now, I'm only allowed 50-60 grams of protein a day and that's it. A 4 ounce lean steak is 35 grams so it's been tough. And there's also the restrictions on potassium, sodium, and phosphorous just to make things interesting. We've...
Kidney Disease · May 28, 2019
My journey through dialysis and beyond